Monday, November 20, 2017

2 months after surgery

About 6 weeks after my surgery I asked my sinus doc if I could start my sporanox again as I was a bit phlegmy.  He said to try it - but after a couple of days I got pretty constipated so I stopped. I was eating more fibre and gradually got  back to normal. Then a few days later I went for my routine 6 month Prolia shot (for osteoporosis ). Previously nothing bad had happened but this time  I had a bad reaction - really severe back, leg and arm pain and constipation.  It took a couple of weeks to clear up.  Meanwhile my left foot swoll up and I couldn't go on a decent walk. I guess I had overdone it in shoes that were a bit too tight. I felt I was getting sicker instead of better. On top of that I had more and more phlegm and coughed a lot especially in the morning but also at night.

But there were also good things. A couple of weeks ago we bought our new puppy - Hunter. It is really challenging to raise an 8 week old puppy but it is never boring. Mike actually does most of the work because I got scratched and nipped and I could only go near him when I was wearing gloves.

Meanwhile I started touching up some of the paintings I had been staring at for weeks. This was very fun. Last weekend I was part of a really great art show in Ladysmith.  Mike is still amazed that I actually pulled it off but it is mainly because he helped me in every way.

Today I went to see my sinus doc at St Paul's in Vancouver.  She found a lot of mucous in my sinuses. It is being caused by my reaction to fungus and would likely clear up with sporanox.  In the past this nasal phlegm  has eventually led to an asthma exacerbation.   However she said not to take sporanox until 3 months after my surgery since the constipation problem would be worse than the phlegm problem. Instead I will double up my pulmicort nasal drops and hope for the best. This was Hunter's first ferry trip and I think we all did really well - except the salmon burger was really too much and gave me gas. I still need to watch what I eat.

I will go to see my asthma doc in a couple of weeks to see what ideas he has. Since this is supposed to be an asthma blog what I am trying to say is that having a chronic disease like asthma makes if more difficult to deal with the other health problems that arise day by day. Hopefully  we will find a good balance - so my bowels will be good and my asthma will be  good.

In the meantime the Asthma Canada committee I am on has come up with a really good little video on biologics and I think I actually contributed to the final product.

I also think I am one of the luckiest people I know and I am having a very good life. 

Monday, November 13, 2017

Drug Side Effects

It is now almost 2 months since my surgery and I am doing quite well. My only issues have been with drug side effects.

My first problem was with sporanox which I take to stop my allergy like reactions to fungus which exacerbates my asthma and sinus disease. It has worked very well and I felt virtually symptom free for many months - except that I had problematic interactions with warfarin and a potent anti-inflammatoryI took for my oral surgery,  I stopped taking it when I had my surgery but started again after 6 weeks. After taking sporanox for a couple of days I found that I had become quite constipated. This was scarey given my modified large intestine. I emailed my sinus doc and he agreed I should stop taking it for a while. However I am coughing a lot and getting quite phlegmy - which may be because I have lost the protection of sporanox against fungus. Hopefully there is another antifungal which doesn't cause constipation. I will see his fellow next week and try to decide what to do.

My second problem was with prolia which I take to prevent fractures caused by osteoporosis. I take it by injection every 6 months. The first time I took it I didn't have any reaction except a bit of a feeling of being "down" for a couple of days. I took it last week and had a really bad pain reaction - my back in particular was so painful I couldn't believe it and so were my my joints and muscles. It was awful for one day and then the pain gradually wore off. The other problem with prolia was constipation -again. I upped my metamucil and started to eat bran buds. After about a week I got back to normal - what a relief!

I haven't been to see any medical person about these issues - I hope I can fix them myself. I am hoping that if I continue to up my fibre intake from food I will be able to drop back on metamucil to one dose per day and get back to healthy bowel habits. I do have to see my GP before I get my next prolia in 6 months - so I will definitely tell him how nasty it was.

Oh yes - our lovely new puppy nipped me and cut me with his sharp little claws. My skin is so thin that I had to tape myself up and glue myself together. Moderately painful. I solved this with sports gloves and disposable nitrile gloves which I use for painting. Why is my skin so thin? Prednisone may be part of the reason.

Wednesday, October 11, 2017

Cancer gone

Yesterday we went to see my surgeon. He said just what my GP had said "Well my dear you had cancer but now it is completely gone." Gone ! I am so lucky and the BC health care system worked so well for me. It started with my sinus doc's fellow listening to my concerns about a year ago that there was something going on because my feet were swollen. A test revealed a DVT. That led to warfarin and strangely pink poops. Eventually I asked for and got a fit test because I knew that wasn't normal. There was blood in the test so eventually I got a colonoscopy.  After that things moved fast - a ct scan, bowel surgery, a bit of a set back requiring a naso-gastric pump for 5 days. Pain and pain medicine 10 times stronger than morphine. Finally a fart  and a poop - all systems started to work. No more pain. Then some food! Now I am pronounced cured. It all seems almost like a bad dream.  I am still a bit weak and tire much more easily than normal. I still need to eat fairly low fibre food. But I can push myself and get back to my old life. It is an amazing reprieve and I need to make sure I use this gift if time wisely.

Friday, October 6, 2017

Day 18

Today is Day 18 if you include day if surgery as Day 1. I seem to have fallen into a pattern. Get up around 8. Eat breakfast of fried egg, ham, toast, fruit and coffee. Coffee gets bowels moving. Yippee. Read news etc. Go for a good walk - about 4000 steps some uphill. Read for a bit. Drink juice and ginger ale. Eat lunch with protein (fish), toast, fruit. Read again. Until today I fell asleep for an hour or so. Take another good walk. Have a snack.  Read book or news and maybe send emails.  Dinner with lots if protein and Mike's vegetable medley and avocado. Read some more or just lie down on couch for a rest. Then watch a bit if T.V. At about 10:30 get ready for bed. Drink Metamucil.  Take my sleeping pill with pound cake - otherwise it seems to stick in my throat which is still a bit sore from ng. Sleep nicely.  Start again. Mike is being great.  I'm not being very productive but doing my best to get back to health. One bit of progress is cutting back sleeping pill a bit. No sporanox.  As much food and drink as I can manage.

Wednesday, October 4, 2017

16 days after surgery

WThe weather has gone back to being sunny and fairly mild (high 16 c). It is so lovely to look out the big front windows and see Departure Bay, Newcastle Island and other islands beyond. There is usually a breeze and some of the maples are showing signs of changing colour. Good weather makes it so easy to put on a jacket and go for a walk. The most I have walked so far in a day is 6.6 km (8800 steps). I believe walking is fairly easy for me because I always liked  to walk. My brain is geared toward walking almost like a default. It was a little more explainable when we had Lexy: "oh time to take Lexy for a walk." Now it's "I need to walk to keep my systems functioning." But really I just want to walk.

I think I have inadvertently fallen into a fairly good mental state.  I am not worried and I do not have pain. It really is about living day by day. I have only a few things I must do each day.  Every morning I have my Fragmin injection to prevent another DVT.  I stick the needle in to a fattish part of my thigh and Mike presses the plunger which pops out a cover so the needle is covered when it come out. Mike makes me a fried egg etc for breakfast. I drink as much juice and ginger ale during the day as i can and eat as much food as I can. I think I must have at least one bowel movement and lots of pees. I drink a glass of Metamucil before bed - but having a good poop is still a worry. My diet is low fibre and I miss not having bran buds each day. Then we do at least 4 good walks per day. Sometimes we bump into friends which is always uplifting. In between I read my book and later in the evening maybe  watch a little TV which can be quite relaxing. I look at my paintings hung around the house and think how I could improve them. I am strong enough to dab away with a paint brush but could not yet put any thought into what I was doing so won't do that for awhile. So bit by bit I am using my reasoning brain to get better and am keeping on a fairly level emotional level. I don't think I will crash.

Mike meanwhile is taking care of everything and reading about puppy training. It is 4 weeks since we had the vet euthanize our poor little Lexy. I cried a lot at time because I knew it was the end of an era although I didn't know then that I would need surgery. But for life to go on we have to change - often in ways we don't really want to.  So there you go. Change is the only constant and what was normal yesterday may not be normal today

Friday, September 29, 2017

It was cancer

Today I saw my GP. He read the report on the biopsy of my lump. Apparently it was cancer but low grade and slow developing. It had penetrated my bowel wall but not gone through. The surgeon  removed it along with 14 cm of bowel. Since it was all removed I will probably be fine and not need chemo. I think I am very lucky and I am feeling unbelievably better every day. I spend my time walking, eating, resting and sending emails.  On the asthma front I seem to be fine though I still have phlegm and coughing probably from gn. I lost around 10 lbs so my next target is to get strong as fast as I can.

Thursday, September 28, 2017

Surgery now done

My surgery is done and I came home yesterday. It was a pretty arduous experience because I had a setback on about the third day. Up until then I was doing ok and even eating light foods.  I remember chicken soup the first night. Apparently on the second night my stomach stopped draining and fluid built up. I got quite swollen and had bad pain. To fix this required a gn tube - gastric nasal - inserted through my nose and down my throat to my stomach. It had a pump which suctioned the stuff out of my stomach and into a container. It could be turned off when I needed to go to the toilet. While I had the gn, I could not eat or drink anything except ice chips and I  was sometimes in pain plus nausea. Apparently the drugs I took were 10 times more powerful than morphine and definitely worked. The tube have me a sore throat and made it hard to swallow pills. I think it might have damaged my throat because phlegm would build up and make me cough. A lot. It still happens occasionally.

I was a bit slow passing gas - required before I could eat. I walked the busy halls - I called it "walking for a fart" - either with Mike or alone.  Mike was so great and came in 4 times a day - sometimes just to sit and hold my hand.  He kept in touch with everyone. Elspeth came for a visit on Saturday which was really wonderful. I think it was Monday when I  had my first fart. Yippee!

My room had 4 patients. One of them was there when I arrived and still there when I left - poor thing. She didn't walk much but avidly read library books. She lived alone so had a lot to deal with. Another notable patient was a tourist from Italy who didn't speak English and had had to have surgery on her broken ankle.

Finally the gn came out and the next day I could eat lunch and dinner. The day after - which was yesterday - I had my first poop and was allowed to leave that morning

It is so great to be home and get away from the horrible hospital smell. Especially the really stinky toilet. All the nurses were very kind and professional which made it bearable. But at home it is bright and sunny. Just lovely. And Mike cooks great meals. I am so hungry especially for meat. Overall I lost 8 lbs so am a bit weak , gaunt and covered in bruises. I have to inject fragmin once a day to keep from getting a DVT. That's enough for today.  Tomorrow I see my GP and hope he doesn't have any bad news like I had cancer. What is is - so I won't worry.