Wednesday, October 11, 2017
Friday, October 6, 2017
Today is Day 18 if you include day if surgery as Day 1. I seem to have fallen into a pattern. Get up around 8. Eat breakfast of fried egg, ham, toast, fruit and coffee. Coffee gets bowels moving. Yippee. Read news etc. Go for a good walk - about 4000 steps some uphill. Read for a bit. Drink juice and ginger ale. Eat lunch with protein (fish), toast, fruit. Read again. Until today I fell asleep for an hour or so. Take another good walk. Have a snack. Read book or news and maybe send emails. Dinner with lots if protein and Mike's vegetable medley and avocado. Read some more or just lie down on couch for a rest. Then watch a bit if T.V. At about 10:30 get ready for bed. Drink Metamucil. Take my sleeping pill with pound cake - otherwise it seems to stick in my throat which is still a bit sore from ng. Sleep nicely. Start again. Mike is being great. I'm not being very productive but doing my best to get back to health. One bit of progress is cutting back sleeping pill a bit. No sporanox. As much food and drink as I can manage.
Wednesday, October 4, 2017
WThe weather has gone back to being sunny and fairly mild (high 16 c). It is so lovely to look out the big front windows and see Departure Bay, Newcastle Island and other islands beyond. There is usually a breeze and some of the maples are showing signs of changing colour. Good weather makes it so easy to put on a jacket and go for a walk. The most I have walked so far in a day is 6.6 km (8800 steps). I believe walking is fairly easy for me because I always liked to walk. My brain is geared toward walking almost like a default. It was a little more explainable when we had Lexy: "oh time to take Lexy for a walk." Now it's "I need to walk to keep my systems functioning." But really I just want to walk.
I think I have inadvertently fallen into a fairly good mental state. I am not worried and I do not have pain. It really is about living day by day. I have only a few things I must do each day. Every morning I have my Fragmin injection to prevent another DVT. I stick the needle in to a fattish part of my thigh and Mike presses the plunger which pops out a cover so the needle is covered when it come out. Mike makes me a fried egg etc for breakfast. I drink as much juice and ginger ale during the day as i can and eat as much food as I can. I think I must have at least one bowel movement and lots of pees. I drink a glass of Metamucil before bed - but having a good poop is still a worry. My diet is low fibre and I miss not having bran buds each day. Then we do at least 4 good walks per day. Sometimes we bump into friends which is always uplifting. In between I read my book and later in the evening maybe watch a little TV which can be quite relaxing. I look at my paintings hung around the house and think how I could improve them. I am strong enough to dab away with a paint brush but could not yet put any thought into what I was doing so won't do that for awhile. So bit by bit I am using my reasoning brain to get better and am keeping on a fairly level emotional level. I don't think I will crash.
Mike meanwhile is taking care of everything and reading about puppy training. It is 4 weeks since we had the vet euthanize our poor little Lexy. I cried a lot at time because I knew it was the end of an era although I didn't know then that I would need surgery. But for life to go on we have to change - often in ways we don't really want to. So there you go. Change is the only constant and what was normal yesterday may not be normal today
Friday, September 29, 2017
Today I saw my GP. He read the report on the biopsy of my lump. Apparently it was cancer but low grade and slow developing. It had penetrated my bowel wall but not gone through. The surgeon removed it along with 14 cm of bowel. Since it was all removed I will probably be fine and not need chemo. I think I am very lucky and I am feeling unbelievably better every day. I spend my time walking, eating, resting and sending emails. On the asthma front I seem to be fine though I still have phlegm and coughing probably from gn. I lost around 10 lbs so my next target is to get strong as fast as I can.
Thursday, September 28, 2017
My surgery is done and I came home yesterday. It was a pretty arduous experience because I had a setback on about the third day. Up until then I was doing ok and even eating light foods. I remember chicken soup the first night. Apparently on the second night my stomach stopped draining and fluid built up. I got quite swollen and had bad pain. To fix this required a gn tube - gastric nasal - inserted through my nose and down my throat to my stomach. It had a pump which suctioned the stuff out of my stomach and into a container. It could be turned off when I needed to go to the toilet. While I had the gn, I could not eat or drink anything except ice chips and I was sometimes in pain plus nausea. Apparently the drugs I took were 10 times more powerful than morphine and definitely worked. The tube have me a sore throat and made it hard to swallow pills. I think it might have damaged my throat because phlegm would build up and make me cough. A lot. It still happens occasionally.
I was a bit slow passing gas - required before I could eat. I walked the busy halls - I called it "walking for a fart" - either with Mike or alone. Mike was so great and came in 4 times a day - sometimes just to sit and hold my hand. He kept in touch with everyone. Elspeth came for a visit on Saturday which was really wonderful. I think it was Monday when I had my first fart. Yippee!
My room had 4 patients. One of them was there when I arrived and still there when I left - poor thing. She didn't walk much but avidly read library books. She lived alone so had a lot to deal with. Another notable patient was a tourist from Italy who didn't speak English and had had to have surgery on her broken ankle.
Finally the gn came out and the next day I could eat lunch and dinner. The day after - which was yesterday - I had my first poop and was allowed to leave that morning
It is so great to be home and get away from the horrible hospital smell. Especially the really stinky toilet. All the nurses were very kind and professional which made it bearable. But at home it is bright and sunny. Just lovely. And Mike cooks great meals. I am so hungry especially for meat. Overall I lost 8 lbs so am a bit weak , gaunt and covered in bruises. I have to inject fragmin once a day to keep from getting a DVT. That's enough for today. Tomorrow I see my GP and hope he doesn't have any bad news like I had cancer. What is is - so I won't worry.
Sunday, September 17, 2017
What surgery? It's called a bowel resection and means that my surgeon will be removing a section of my large intestine to get rid of the strange "sigmoid mass" which has grown in the lower section (formerly I called it a polyp.) The colonoscopy showed that it was abnormal. the surgery will show what that actually means. If it's cancer I will have to have chemo. I sure do hope it's not.
In the meantime, my CT scan showed that I do not have any cancer anywhere else. This is a really good sign that all should be well. The CT itself included dye - which I had never had before. It was pretty benign - I could feel the warmth from the dye as I lay in the scanner. When I got home I ate some breakfast, went for a walk and then ate some lunch. After lunch I felt so tired, I decided to lie down in bed and I fell into a deep warm sleep. I got up for a few minutes, still felt tired and went back to sleep - same thing a couple of hours later. By dinner time the drug seemed to have worn off and I ate dinner and watched TV. That was 2 Fridays ago.
Tuesday I had my appointment with my surgeon. He simply said I have to have surgery, showed me a diagram and said I wouldn't miss the section they cut out and that the two ends would be stapled together and then stuck back in. It will be done laproscopically which means no big incision like the one I had for my gallbladder almost 50 years ago. Just a few holes. The surgery should only be moderately painful and recovery should be much faster than my gallbladder. In fact recovery seems to be all about having your first fart - a sign that your bowels are getting back in action. This, in turn, can be speeded up by getting up at least 3 times a day and walking around. If I can. I will get up more than three times. Nausea and recovery can also be improved be chewing sugarless gum. There's also coughing to clear you lungs after the unaesthetic. That's about all I know.
I went to two appointments - one a pre-surgery with a nurse and one one with an anaesthesiologist. There are two other big things to do. One is to completely empty my bowels again. The other is to have a good wash with a special sponge the night before and the morning of. Also only clear liquids startitng the night before (last night.)
I just took my bowel purging preparation - pico salax. It didn't require any extra drinking and was only a small cup of orange flavoured liquid. Nothing has happened yet but I feel a bit gassy. I should have a few watery bowel movements soon. I hope - hope - hope I don't get nauseated again.
Tomorrow I check in at Admitting at 6 am. I just take my care card, glasses and symbicort. Mike will take my clothes home. Wne i am in my room Mike will bring me a bag with a few basic necessities including pulmicort, tooth brush, slippers. I'm expected to be in hospital for about 5 days - really until the first fart so could be sooner or later. Not much you can do to get that happening except get a bit active.
Ho do I feel? I'm basically pretty scared, pretty annoyed and pretty grateful that this mass was discovered before it got out hand (I hope). If Annilee hadn't sent me for an ultrasound and my DVT hadn't seen pink poops I would not have asked for a fit test and this could have gone undetected for a long time. I am sort of annoyed that the doctor I first called about the pink poops didn't alert me to fact that there could be a problem and I left it for 6 months before I asked my GP for a fit test. I am also a bit annoyed that it took more than 3 months for me to get my colonoscopy after the fit test came back positive. Hopefully the whole thing is so slow growing it won't make much difference.
I am so grateful to Mike and my kids and other relatives for being very supportive. Mike and I went to a jazz concert last night. When this is over I hope we do a lot more stuff like that - singing, skating, RVing, supporting Asthma Canada, going to the opera and visiting friends and relatives - PLUS getting back to painting in a serious way. I am so grateful I don't have any nausea right now and hope it stays that way. Bring on the poops. There's no turning back and I just have to do it.
Thursday, September 7, 2017
Tuesday was a sad day because we took Lexy to the vet to have her "put down." She had congestive heart failure and was so sick - coughing and coughing and swollen up like a water melon with fluid. On Saturday something had happened to one of her back legs and she could not put weight on it. She did adapt to this and could get around - but we knew she was suffering and would never get better. The vet was very kind and Lexy died very peacefully - but I miss her really a lot and could actually cry right now just thinking of her. We have cleaned up all her stuff - mats, dishes, leashes, etc and taken her special food to the SPCA. Now we are getting used to life without a dog.
I fear that my colon issues and Lexy's death have got mixed up in my mind. I hope I don't have anything awful and will try to be stoic about it.